User agreement and terms.

RORA Compass Privacy, Legal, and Charitable Disclosure Statement

RORA Compass is a nonprofit, charitable organization based in Delaware, Ohio, recognized under Section 501(c)(3) of the Internal Revenue Code. Contributions are tax-deductible as permitted by law (Federal EIN 33-4971014). With funds raised, RORA Compass supports medical research and advocacy, connects families and communities, and sustains its general operating fund to advance our mission of improving outcomes for families navigating rare or complex medical challenges.

RORA Compass values your privacy and trust. We collect only the information necessary to provide our programs and communications. Personal data—such as contact information or family details voluntarily shared—is used solely to further our mission and is never sold or publicly disclosed. We may share limited information with trusted service providers who support our operations under strict confidentiality. You may request access, correction, or deletion of your data at any time by contacting rora.compass@gmail.com. We maintain safeguards to protect your information and comply with applicable data-protection laws.

The information provided on this website and in RORA Compass materials is intended for general informational and educational purposes only. It does not constitute medical advice, diagnosis, or treatment, and it has not been reviewed or endorsed by licensed medical professionals. Always seek the guidance of a qualified healthcare provider regarding any medical questions or concerns. Use of this site does not create a doctor–patient or other professional relationship. In an emergency, call 911 or seek immediate medical assistance.

This website may contain links to third-party sites for convenience. RORA Compass does not endorse or control these external websites and is not responsible for their content or privacy practices. By using this website, you agree that RORA Compass, its staff, volunteers, and affiliates shall not be liable for any loss, damage, or injury arising from reliance on the information provided. In no event shall RORA Compass or its representatives be liable for any indirect, incidental, consequential, special, punitive, or exemplary damages connected to the use of this site.

This statement and your use of the RORA Compass website are governed by the laws of the State of Ohio, United States. RORA Compass reserves the right to update this statement without prior notice. Any changes will be posted on this page with a revised effective date.

Effective Date: November 1, 2025