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Celebrating Our Donors

Thank You to Our Founding Donors (Through January 2026)

Alison Vinciguerra * Amanda Swanson * Amanda Thomas * Andrea Ward Ross * Andy Lindsey * Anita Puri * Ann C. Means * Anonymous Donors * Arnab Nandi * Auntie Ash & Uncle Chris * Barbara Comstock * Barbara and Tim McCombs * Bryan and Kim Sisto * Cheryl and Doug Godard * Cheryl and Tom Hoffman * Christine Bailey * Christopher Russo * Dana & Tom Koprowski * David V. Whitaker * Diversified Systems * Elaine Turville * Emily Miracle * Emily Yarletts * Eric V. Weinberg * Eryn Schultz * Heather and Brian Payne * Heather Cantrell * Jennifer Sisto Gall * Jenny Brodie * Jessica Roy * Jessica Schein * JJ & Sarah Follano * Joshua Sandstrom * Judy McCurdy * Kathy Couling * Katie Brown * Kheil McIntyre * Leslie and Bill Junk * Liliana Kennon * Lincoln & Russell Mastrorio * Lincoln, Declan, and Coleman Brown * Maryanne and Steve Riege * Nancy and John Huneck * Natalie Sisto * Nathan & Jenn Palmatier * Nicholas Pistentis * Paula O’Reilly * Patricia and James Sisto * Peter Comstock * Rebekah and Aaron Monroe * Robin Boggs * Rory Means * Schachner Consulting * Susan Jacobson and David Moskovitz *

Thank You to Our Donors (February 2026 Onward)

Megan Passerini * Nathan Lewis * Yaarit and Ian Silverstone *

Why give?

Your donation will fund critical research, as detailed here.

Our $100,000 Goal will support Phase 1 preclinical research. Trusted lab partners will establish a RORA mouse line and phenotype the mice to replicate common disease characteristics. Successful completion of this work will lay the foundation for Phase 2 to deliver different gene therapy vectors to see if there are clinical improvements.

A young boy standing outdoors on a grassy lawn with large green bushes and rocks in the background, wearing a light-colored button-up shirt, khaki pants, and sandals.

“To help my brother get control over his seizures.”

RORA Sibling

Smiling woman with glasses, earrings, and layered necklaces, in an indoor space with blurred background.

“So my daughter can play without fatigue and imbalance.”

RORA Mom

A woman wearing a white coat with an embroidered logo, standing outdoors near a tree with a background of green leaves and sunlight filtering through.

“To connect the patient community and share treatment successes.”

Neurologist

Donation Details

  • Your donation is helping in two ways:

    1. To fund research efforts aimed at better understanding RORA variants and exploring pathways to accelerated therapeutic interventions

    2. To launch RORA Compass by building the general operations fund managed by our all-volunteer team - we have no paid staff

  • Yes. RORA Compass is a 501(c)(3) charitable organization and is eligible to receive tax-deductible contributions in accordance with Code section 170.

  • All donations made to RORA Compass are considered final and non-refundable, unless otherwise required by law. Contributions will be used to support the charitable purposes described in our mission, and RORA Compass retains full control and discretion over the use of donated funds in accordance with our Bylaws.