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Why give?

Your donation will fund critical research.

Our $100,000 Goal will support Phase 1 preclinical research. Trusted lab partners will establish a RORA mouse line and phenotype the mice to replicate common disease characteristics. Successful completion of this work will lay the foundation for Phase 2 to deliver different gene therapy vectors to see if there are clinical improvements.

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“To help my brother get control over his seizures.”

RORA Sibling

“So my daughter can play without fatigue and imbalance.”

RORA Mom

“To connect the patient community and share treatment successes.”

Neurologist

Celebrating Our Donors

Founding Donors (Contributions in December 2025)

Coming Soon

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Coming Soon 〰️

Donation Details

  • Your donation is helping in two ways:

    1. To fund research efforts aimed at better understanding RORA variants and exploring pathways to accelerated therapeutic interventions

    2. To launch RORA Compass by building the general operations fund managed by our all-volunteer team - we have no paid staff

  • Yes. RORA Compass is a 501(c)(3) charitable organization and is eligible to receive tax-deductible contributions in accordance with Code section 170.

  • All donations made to RORA Compass are considered final and non-refundable, unless otherwise required by law. Contributions will be used to support the charitable purposes described in our mission, and RORA Compass retains full control and discretion over the use of donated funds in accordance with our Bylaws.